Privacy Policy
Effective Date: May 01, 2026
rarediseaseinfo.online provides informational content related to Rare diseases & diagnostic informatics and is committed to being transparent about how visitor data is handled. Our resource serves patients, medical professionals, researchers, and anyone seeking authoritative information about complex medical conditions. This privacy policy explains how we collect, use, and protect user information.
Information We Collect
When you visit rarediseaseinfo.online, our systems automatically collect certain technical data to improve site performance and user experience. This includes your IP address, browser type, device characteristics, visited pages, session duration, and interaction patterns with our content. For users who voluntarily submit information through contact forms or newsletter signups, we collect email addresses and optional demographic details that help us tailor our rare disease resources.
How We Use Your Information
The data we collect serves several important purposes. Technical information helps us diagnose site performance issues, understand content engagement, and optimize our diagnostic informatics resources. Voluntarily submitted contact information allows us to respond to user inquiries, send relevant updates, and improve our content based on user interests. We want to be absolutely clear: your personal data is not sold or shared with unaffiliated third parties for their own marketing purposes.
Cookies and Tracking Technologies
Cookies are small text files stored on your device that help websites remember your preferences and track site performance. Our site uses first-party cookies for analytics and site functionality, allowing us to understand how users interact with rare disease content. Third-party cookies might be used for advertising and performance tracking. Users can manage cookie settings through their browser preferences, though this might limit some site features.
Google AdSense and Third-Party Advertising
Google serves advertisements on our site using the DoubleClick cookie. These ads are personalized based on your browsing history across various websites. Advertisements help support our mission of providing free, accessible rare disease information. Users can manage their ad preferences directly through adssettings.google.com and adjust personalization settings as they prefer.
Links to Third-Party Websites
Our site may contain links to external resources, medical databases, or research institutions. While we carefully curate these links, we cannot guarantee the privacy practices of these third-party sites. We recommend reviewing each site's privacy policy when you navigate away from rarediseaseinfo.online.
Data Security
We implement industry-standard security protocols to protect user information from unauthorized access, disclosure, or modification. This includes encrypted connections, secure server configurations, and regular security audits. However, no online system is 100% secure, and users should exercise caution when sharing sensitive information.
Your Privacy Choices
You have multiple options for managing your privacy. Browser settings allow cookie management and tracking preferences. For specific requests about your data, including access, correction, or deletion, please contact support@rarediseaseinfo.online. Users can also opt out of personalized Google advertisements at adssettings.google.com.
Children's Privacy
Our site is intended for educational purposes and is not directed at children under 13. We do not knowingly collect personal information from minors. Parents or guardians concerned about their child's online interactions are encouraged to contact us directly.
Changes to This Policy
Privacy practices evolve with technological and regulatory changes. We may update this policy periodically and will publish the most current version on our website. Continued use of rarediseaseinfo.online after policy updates constitutes acceptance of those changes.
Contact Us
For any privacy-related questions, concerns, or requests, please reach out to support@rarediseaseinfo.online. Our team is committed to providing clear, helpful responses and maintaining the highest standards of user privacy and data protection.